As a parent I think one of the toughest things is letting go. Regardless of any health issues our children have, we always want our kids to be safe and happy. When your child has an unpredictable disorder that could at any moment cause them to lose consciousness, it’s hard Full Article
How Big is Your Brave?
Many of you know that my 16-year old daughter, Caitie, has been through a lot. She has suffered from Epilepsy her whole life and has become an advocate for her disorder in the last two years. Worldwide Epilepsy affects over 65 million people and it has a pretty significant stigma Full Article
Epilepsy in Young Adult Fiction
I’ve been working on my summer reading list and it is full of great young adult titles. But one thing I’ve noticed, that I never did before, was how often epilepsy and seizures are mentioned in these books. And how often they are mentioned in derogatory terms. My 16-year old Full Article